down's syndrome
awareness
awr_downsyndrome

Down’s syndrome is a chromosomal abnormality characterized by the presence of an extra copy of genetic material on the 21st chromosome, also called the Trisomy. “The day, observed the world over from last year, was chosen to correspond with 21st chromosome and Tri, meaning three, respectively,”.

chromosome

How can one come to know of what Down Syndrome really is? And that it is that it is not a disease but a genetic disorder? Where can one find resources for families and support for educators who welcome children with Down Syndrome into neighbourhood classrooms?

Every year, parents of children afflicted with this syndrome and other support providers reach out to communities and families of those who have a newborn baby with this genetic disorder in their family.

A few ways to actually reach out better to the general public would include providing "new parent" packets to the new parents of Down Syndrome afflicted babies through local hospitals, obstetricians, paediatricians and public health nurses. Then scheduling Down Syndrome displays in public libraries, city halls and schools, and also writing letters to the editors of mainstream monthly parenting newspapers and magazines etc. can help spread DS-awareness.

Help can also be sought from newspaper editors, local television and radio interview programs, and local television news editor. Providing stories, incidents, write-ups, reports, etc. about Down Syndrome, lists of events organized through the year for them, real life-incidents of those who have fought this disorder and have overcome various obstacles etc. can all prove useful in attracting media attention.

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Another way to inform people about Down Syndrome could be by providing a one-page list of people with DS of all ages, back to school issues, supported employment opportunities, parent outreach programs, and how people with Down Syndrome are participating in your community. Actually, people with DS are all around, accomplishing many impossible things and performing feats, and yet do not get the recognition they deserve.

It is essential to bring into limelight the talents, abilities and interests of these children to bring out the best in them. The public libraries should be encouraged to stock books including complete details on Down syndrome and information for families on supporting their children.

Many still consider and believe that DS is a disease, and don’t realise that the truth is something else. A lot of effort still needs to be put in this direction and establish certain facts regarding DS.

There is always hope and a helping hand, but it is just that one must have the strength and courage to reach out for it.

Mathru Mandir, as organization dedicated to the rehabilitation of those with Down’s syndrome, was established in 1983 by Dr.Rekha; it has come a long way since then. “Medicines and a better understanding of the disease have helped us a lot. Now we are moving in a different direction,” she informs. Towards that, her organization is conducting many activities to help children with the syndrome – such as special training sessions, parental education and counseling. “We provide family counseling since this abnormality has to be properly understood not just by the parents alone, but all others in the family,” she says.

All we need is a proper support system for people to understand this affliction in a better way...” she concludes.


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